The Fred Saremi Memorial FCS Foundation Virtual 5K
June 11, 2026 @ 12:00AM — 11:55PM Eastern Time (US & Canada) Add to Calendar
The FCS Foundation mission is to establish a global support network to promote advocacy and education for patients and caregivers living with FCS. The FCS Foundation provides patients, caregivers, and healthcare providers the opportunity to identify and support best treatments, disseminate meaningful lifestyle management tools, and develop more accurate diagnostic systems for individuals. FCS occurs in about 1 in 1 million people and the genetic disorder causes the body to not be able to break down certain fats correctly. This disease frequently leads to symptoms such as pancreatitis — a very serious condition that causes inflammation of the pancreas and can lead to death – and fatty deposits in the skin. For more information on FCS please visit https://livingwithfcs.org/
JOIN US for The Fred Saremi FCS Foundation Virtual 5K
Thursday, June 11, 2026
The Virtual 5K can be completed anywhere you choose, it just needs be a continuous 3.1 miles!
Record your 5K with any tracking app or watch (Fitbit, Garmin, Apple Watch, Map My Run, Stava, etc.). Submit a snapshot of your time with a selfie or group picture to editor@livingwithfcs.org for your chance to win a prize!
Spread the word by sharing your selfies or group pictures on your social media pages using
#livingwithFCS #FCS2026K #RareDisease
Check out the FCS Foundation website for additional resources and information at https://www.livingwithfcs.org/